Click on desired link:
North America
South America
Europe
Australia
Asia
Africa
[DISCLAIMER: The National Pediatric Myoclonus Center provides this list as potential resources in other countries, not as an endorsement. We may or may not agree with the recommendations and practices of any organization and are unaware of services provided or fees involved. Suggestions for additional listings as well as feedback about current ones are welcome. If you have questions about the information you receive, consult your health care provider.]
Canada-information pending
Mexico- information pending
Brazil
Magda Lahorgue Nunes, MD, PhD
Division of Neurology - Hospital São Lucas - PUCRS
Av. Ipiranga, 6690 # 220
90610-000, Porto Alegre/RS, Brazil
Phone/Fax: +55 55 33394936
Email: nunes@pucrs.br
Brazilian Pediatric Society
E-mail: sbp@sbp.com.br
France
Opsoclonus-Myoclonus/Child Neurology
Dr. Philippe Evrard
Professor and Chief, Service of Pediatric Neurology and Metabolic Diseases
Director of the INSERM Laboratory E9935
Xavier-Bichat Medical School (University of Paris 7 Denis-Diderot)
Hôpital Robert-Debré
48 Boulevard Sérurier, F-75019 Paris, France
Tel.: 33.1.40 03 47 73 (office). Fax: 33.1.40 0347 74
e-mail: philippe.evrard@rdb.ap-hop-paris.fr
or philippe_evrard@compuserve.com.
URL: http://www.pediatric-neurology-paris.org
Germany
1) Research Centers for Neuroblastoma:
Studienzentrale für Neuroblastom
Prof. Dr. med Frank Berthold
Universitätskinderklinik Köln
Joseph-Stelzmann-Str. 9
50924 Köln
Tel: +49-221-478-6850
Fax: +40-221-478-6851
Email: frank.berthold@medizin.uni-koeln.de
Herrn Prof. R. Erttmann
Universitätsklinikum Hamburg-Eppendorf
Department of Pediatric Oncology and Hematology
Martinistr. 52
D-20246 Hamburg, Germany
Telefon: (040) 42803-3729
Telefax: (040) 42803-5137
Email: erttmann@uke.uni-hamburg.de
2) Neuroblastoma Support Groups
Fördergesellschaft Kinderkrebs-Neuroblastom-Forschung e.V.
Vors. Markus Schuster
Am Tonhügel 5
76534 Baden-Baden
Tel: +49-7223-60960
Email: Fördergesellschaft-Neuroblastom@t-online.de
Deutsche Kinderkrebsstiftung
Joachimstr. 20
53113 Bonn
Tel: +49-228-9139430
FAx: +49-228-9139433
Email: info@kinderkrebsstiftung.de
www.anna-merkel.de
Email: info@anna-merkel.de
3) Opsoclonus-Myoclonus/Child Neurology
Dr. Franz Blaes
Neurologische Klinik
Justus-Liebig-Universität Giessen
Am Steg 14
35385 Giessen
fon: 0641-9945317
fax: 0641-9945309
Email: franz.blaes@neuro.med.uni-giessen.de
4) Other information (in German)
Paraneoplastische Syndrome (PNS)
http://www.med.med.uni-muenchen.de/iontest/bc4/BC032.HTM
Italy- information pending
Netherlands- information pending
Spain- information pending
Switzerland
Prof. E. Boltshauser
Head Dept. Neurology
Children's University-Hospital
Steinwiesstrasse 75
CH-8032 Zuerich
Phone +41 1 266 73 30 (71 11)
Fax +41 1 266 71 63
e-mail: eugen.boltshauser@kispi.unizh.ch
Other hospitals website of the Swiss Neuropediatric Association:
http://www.neuropaediatrie.ch
Portugal
1) Neuroblastoma
Departamento de Pediatria (Director: Dr. B.p.Sodré Borges)
Instituto Português de Oncologia Francisco Gentil
Rua António B. Almeida, 4200-072 Porto (Portugal)
Phone: + 351 225 501 530 (Ext. 3810) or: +351 225 501 582
Fax: + 351 225 026 489 or + 351 225 092 139
Email: sodre@ipoporto.min-saude.pt
Departamento de Pediatria (Director: Dr. Mário Sousinha)
Instituto Português de Oncologia Francisco GEntil
Rua Prof. Lima Basto 1093 Lisboa Codex (Portugal)
Phone: +351 217 200 430
Fax: +351 217 200 417
Email: hdiap@ipolisboa.min-saude.pt
2) Other information
News story about Lisbon Boy with OMS
http://www.times-online.com/archives/2001/2001jan26lisbon.htm
United Kingdom
1) Opsoclonus-myoclonus Support Group
Dancing Eyes Syndrome International Foundation and Support Group
Jane and Richard Stanton-Roberts
78 Quantock Road, Worthing
West Sussex BN13 2HQ
Tel/fax. 01903 532383
Email: support@dancingeyes.org.uk
2) Neuroblastoma
Department of Oncology
Great Ormond Street Hospital for Children
London WC1N3JH
3) Opsoclonus-Myoclonus/Child Neurology
Dr. Carlos de Souza
Department of Neurology
Great Ormond Street Hospital for Children
London WC1N3JH
Tel: 0207 4059200, ext. 5594
Fax: 0207 813 8279
Email: c.desousa@ich.ucl.ac.uk
Dr. Renzo Guerrini
Professor of Pediatric Neurology
Tel. 44 207 8377618
Fax. 44 207 8339469
Email. r.guerrini@ich.ucl.ac.uk
Dr. Michael Pike
Department of Paediatrics (Paediatric Neurology)
John Radcliffe Hospital
Headington, Oxford, OX3 9DU
Tel. 01865 220649
Fax. 01865 220323
Email: mandcpike@compuserve.com
Scandinavia- information pending
Iceland
Dr. Petur Ludvigsson
Child Neurology
Landsspitalinn University Hospital
101 Reykjavik, Iceland
Middle East
Opsoclonus-Myoclonus/Child Neurology
Dr. Enrique Chaves-Carballo
Department of Neurosciences
King Faisal Specialist Hospital
Riyadh 11211, Saudi Arabia
Fax: 966-1-442-4763
Email: chaves@kfshrc.edu.sa
1. Opsoclonus-Myoclonus/Child Neurology
Dr. Andrew J. Kornberg
Paediatric Neurology
Royal Children's Hospital
Melbourne Neuromuscular Research Institute
Flemington Road, Parkville
Victoria, Australia, 3052
Tel. (03) 9345 5522
ISD (+613) 9345 5522
Fax. (03) 9345 5789
2. Neuroblastoma/Neurology/Oncology
Dr. J.I. Manson, Director of Neurology
Dr. Michael Rice, Head, Oncology
Women's and Children's Hospital Adelaide
72 King William Road, North Adelaide
South Australia 5006
Tel. (08) 8204 7000
Fax. (08) 8204 7459
Email. mansonj@wch.sa.gov.au
(Autoantibody laboratory testing at the Department of Pathology
and Immunology at Monash University)
China
Dr Timothy Liu
Hong Kong Society of Child Neurology & Developmental Pediatrics
Department of Pediatrics
Pamela Youde Nethersole Eastern Hospital
Chai Wan, Hong Kong SAR, China
Phone: 25562669 (Hong Kong)
Fax: 25956111 (Hong Kong)
liutn@netscape.net
Japan
1) Neuroblastoma-infants
Dr Tohru Sugimoto
Professor, Department of Pediatrics
Kyoto Prefectural University of Medicine
465 Hirokoji Noboru Kajiimachi,
Kawara-machi, Kamikyo-ku,
Kyoto 602-8566, Japan
Phone/Fax +81-75-251-5569
E-mail: tosugimo@koto.kpu-m.ac.jp
2) Neuroblastoma-whole age range
The Japanese Society of Pediatric Surgery
C/O Nippon Gakkai Business Center
5-16-9 Honkomagome
Bunkyo-ku, Tokyo 113-8622, Japan
3) Opsoclonus-Myoclonus/Child Neurology
Yukio Fukuyama, MD
Child Neurology Institute
Samban-cho TY Plaza 5 Fl,
24 Samban-cho, Chiyoda-ku,
Tokyo 102-0075, JAPAN
Phone: 81-3-3238-1580
Fax: 81-3-3238-1502
yfukuyam@sc4.so-net.ne.jp
Russia-information pending
Phillipines- information pending
Indonesia- information pending
Prof. Dr. Kazadi K.N. KALANGU, MD
University of Zimbabwe
Dept. of Neurosurgery
P.O. Box A178
HARARE
ZIMBABWE
Phone: 263-4-791631
Fax: 263-4-724912/304703
kalangu@samara.co.zw
